Is Ehlers-Danlos Syndrome a disability? Amazing facts you need

I may earn money or products from the companies mentioned, at no extra cost to you. I only support what I know and love!

Is Ehlers-danlos syndrome (EDS) making your life rough? Is Ehlers-Danlos Syndrome a disability? Amazing facts you need to know to figure it all out. Are you tired of people thinking your constant joint pain is just a result of your clumsy nature? Sick of being told to “just toughen up” when your joints dislocate with every movement?

Well, my fellow bendy warriors, it’s time to set the record straight – Ehlers-Danlos Syndrome (EDS) is no joke. And if you’re nodding your head in agreement right now, it’s time to ask the question that’s been on all of our minds: Is EDS a disability? Let’s dig into some amazing facts you need to know about the disability status of EDS. Get ready to flex those hypermobile fingers, it’s about to get real.

What is Ehlers-Danlos Syndrome (EDS)?

Well, let me tell you, Ehlers-Danlos Syndrome (EDS) is a real tongue twister. Say it five times fast, I dare you. But in all seriousness, EDS is a rare genetic disorder due to a faulty gene that affects the connective tissue in your body. And no, we’re not talking about that friendly little tissue paper that you use to blow your nose. We’re talking about the stuff that holds your body together – your skin, bones, tendons, and organs.

But for those of us with EDS, that connective tissue is about as sturdy as a Jenga tower in the hands of a toddler. Our joints are like rubber bands, stretching way further than they should and dislocating at the slightest movement. Our skin is fragile and can tear like tissue paper. And let’s not forget about the chronic pain that comes along with it. Basically, our bodies are like a malfunctioning bouncy castle at a kid’s birthday party – fun for a little while, but eventually, someone’s going to get hurt.

So yeah, EDS is no joke. But hey, at least we have an excuse for being super bendy and pretzel-like, right? Oh, having a connective tissue disease is so much fun!

What The SSA Looks For In Your Medical Records For Ehler’s-Danlos Syndrome Claims

Is Ehlers-Danlos Syndrome a disability?

Well, let me put it this way – if EDS was a person, it would be that one friend who’s always cancelling plans last minute because their body decided to go on strike. And we all have that friend, don’t we? But in all seriousness, the disability status of EDS is a real issue that affects many of us living with this condition.

Let’s face it, when your joints are dislocating left and right and you’re in constant pain, it’s pretty hard to hold down a steady job or maintain a regular schedule. And while it may seem like a dream to be able to lounge around all day in your comfiest sweatpants, the reality is that being unable to work and support yourself can be a real financial strain.

So, is EDS a disability? The answer is – it depends. The Social Security Administration (SSA) does have a disability listing for EDS, but that doesn’t automatically mean you’ll be approved for disability benefits. It’s a complicated process that involves proving the severity of your symptoms and how they impact your ability to work.

In short, EDS can definitely be a disability for some people. But whether or not it qualifies you for disability benefits is a whole other can of worms. Just remember, if anyone ever questions whether or not EDS is a disability, just ask them to try living in your body for a day. That should shut them up pretty quick.

Importance of understanding disability status for EDS patients

Listen, I know we all like to think we’re invincible superheroes, but the reality is that living with EDS can be a real struggle. And that’s why understanding the disability status of EDS is so important. It’s not just about getting access to disability benefits – although let’s be real, that would be nice. It’s about being able to advocate for yourself and your needs.

When you know your disability status, you can better navigate the world around you. You can request accommodations at work or school, and you can educate others about the challenges you face on a daily basis. It’s kind of like having a secret superpower – you may not be able to fly or shoot lasers out of your eyes, but you have the knowledge and understanding to make your life a little bit easier.

So, my fellow bendy warriors, don’t be afraid to embrace your disability status. It’s not a weakness, it’s a strength. And if anyone ever tries to tell you otherwise, just remember – they’re probably just jealous of your superhuman flexibility.

Is Ehlers-Danlos Syndrome a disability? Different types of EDS

So, we’ve established that EDS can be a real pain in the joints – but did you know that there are actually different types of EDS? It’s like a choose-your-own-adventure book, but instead of dragons and wizards, you get to pick between different types of faulty collagen. Exciting stuff, I know.

First up, we have Hypermobile EDS. This is like the basic model of EDS – it’s the most common type and it’s all about those bendy joints. Think of it as the Honda Civic of EDS – reliable, but not exactly flashy.

Then we have Classical EDS. This type is all about that delicate skin, which can bruise and tear super easily. It’s like having the skin of a ripe peach, but without the delicious fruit inside.

Next up, we have Vascular EDS. This is the rarest and most serious type of EDS. It affects blood vessels and blood vessel walls and it comes with a whole host of scary symptoms like heart problems and arterial ruptures. It’s like driving a Lamborghini – sure, it looks cool, but you’re also one wrong move away from disaster.

There are a few other types of EDS out there, but these are the main ones. So, is EDS a disability? Well, it depends on which type you have and how it affects your body. I have hypermobile EDS (hEDS) and vascular EDS (vEDS), so I deal with a semi-rare, bendy type and rare type of EDS but one thing’s for sure – no matter which type of EDS you’re dealing with, it’s a real pain in the body’s connective tissue.

Is Ehlers-Danlos Syndrome a disability? Symptoms of EDS

The wonderful world of EDS symptoms. It’s like a buffet of pain and discomfort, and everyone’s invited! Let’s start with the basics – joint pain and hypermobility. Want to touch your toes with ease? Congrats, you probably have EDS. But watch out – you might dislocate something while you’re down there.

Then there’s the skin issues. Do you bruise like a ripe banana? Congrats, you might have Classical EDS. Do you have stretch marks that make it look like you were attacked by a tiger? That’s probably a sign of Hypermobile EDS.

But wait, there’s more! How about those fun digestive issues? Are you constantly bloated and gassy? Do you have trouble swallowing? It’s like a never-ending game of gastrointestinal roulette.

And let’s not forget about the fatigue, brain fog, and other fun neurological symptoms. It’s like having a hangover, but without any of the fun memories from the night before.

So, is EDS a disability? Well, with all of these symptoms, it’s definitely a possibility. But hey, at least we have each other and our wonky collagen, right? Let’s just hope that one day they invent a cure for EDS – or at least a really good painkiller.

Here are some of the other delightful symptoms that come with EDS, in no particular order:

• Joint pain and joint hypermobility, because who needs stable joints anyway?
• Skin that bruises and tears at the slightest touch, like you’re made of tissue paper.
• Digestive issues that make you feel like you’re constantly on a rollercoaster, but without any of the fun drops.
• Chronic fatigue and brain fog that make you feel like you’re living in a perpetual state of confusion and exhaustion.
• Postural orthostatic tachycardia syndrome (POTS), which is like having a heart that just can’t make up its mind about whether it wants to beat too fast or too slow.
• Vision problems that make it seem like you’re looking through a funhouse mirror.
• Dental problems that make you wonder if your teeth are made of glass.
• Anxiety and depression that make you feel like the world is just a little too much to handle.
• Fragile skin that tears like tissue paper, because who needs a protective outer layer anyway?
• Thin skin that makes you look like a walking anatomy chart, because everyone wants to see their veins and tendons, right?
• Chronic pain that makes you feel like you’re being stabbed by a million tiny knives, because regular old pain just wasn’t enough.
• Flexible joints that make you look like a human pretzel, because who needs stability and predictability in their movements?
• Stretchy skin that makes you look like a character straight out of a Tim Burton movie, because why have normal, boring skin?
• Small earlobes that make it impossible to wear any kind of earring without them falling out, because who needs jewelry that stays in place anyway?

And that’s just the tip of the iceberg, folks! EDS truly is the gift that keeps on giving, kinda like my right knee…

Is Ehlers-Danlos Syndrome a disability? The Disability Status of Ehlers-Danlos Syndrome

Is EDS a disability? Well, let’s take a look at the disability status of this lovely condition.

First things first – if you have EDS, you know that it can feel like a full-time job just managing your symptoms. And let’s be honest, no one’s paying you for that job. But could you actually qualify for disability benefits?

The answer is… it depends. (Isn’t that always the answer?) It depends on the severity of your symptoms, the type of EDS you have, and whether or not you have any other medical conditions that affect your ability to work.

But don’t worry, there are some bright sides to the disability status of EDS. For one, it’s considered an invisible disability, which means that people might not realize that you’re struggling. So you get to feel like a superhero, hiding your pain and fatigue behind a smile.

And let’s not forget the joys of applying for disability benefits – it’s like playing a game of bureaucratic roulette, where you never know what the outcome will be. Will you get approved on the first try? Will you have to go through multiple rounds of appeals? The possibilities are endless!

So, is EDS a disability? The answer is… maybe. But whether you’re able to work or not, one thing’s for sure – you’re a warrior for dealing with all of these symptoms. And that’s something to be proud of.

Is Ehlers-Danlos Syndrome a disability? Social Security Administration (SSA) and EDS

The Social Security Administration (SSA) is the agency responsible for determining disability status and administering disability benefits in the United States. If you have Ehlers-Danlos Syndrome (EDS) and are wondering if you qualify for Social Security Disability benefits, the SSA has specific criteria they use to determine eligibility.

To qualify for Social Security Disability benefits, you must meet the SSA’s definition of disability. This means that you must have a medical condition that is expected to last at least one year or result in death, and that prevents you from doing substantial work. The SSA has a Listing of Impairments, which is a list of medical conditions that automatically qualify for disability benefits if the condition meets specific criteria.

Unfortunately, EDS is not specifically listed on the SSA’s Listing of Impairments, but that doesn’t mean you can’t still qualify for benefits. The SSA will consider the severity of your EDS symptoms and how they impact your ability to work when making a determination. They will also look at your Residual Functional Capacity (RFC), which is your ability to perform work-related activities despite your medical condition.

Applying for Social Security Disability benefits can be a complicated process, but it can be a lifesaver for those who are unable to work due to their EDS symptoms. If you believe you may qualify for disability benefits, it’s worth consulting with a disability advocate or attorney who can guide you through the application process and help you present your case to the SSA.

Reacting to Ehlers-Danlos TikToks

Is Ehlers-Danlos Syndrome a disability? EDS Symptoms and Disability

While some people with EDS are able to lead relatively normal lives, others may experience significant disability. In this section, we will explore the question of “Is Ehlers-Danlos Syndrome a disability?”, as well as the process of applying for disability benefits and the resources available to those with EDS.

Is Ehlers-Danlos Syndrome a disability? Joint pain and instability

Joint pain and instability are common symptoms of Ehlers-Danlos Syndrome (EDS) that can significantly impact a person’s ability to work and perform daily activities. Joints affected by EDS are often hypermobile, meaning they can move beyond the normal range of motion, and are more prone to dislocations and other injuries. This can lead to chronic pain, inflammation, and difficulty with basic tasks like walking, standing, or lifting objects.

For those with severe joint pain and instability due to EDS, working can be incredibly challenging or even impossible. In these cases, Social Security Disability benefits may be available to help cover living expenses and medical costs. It’s important to note, however, that the severity of symptoms and their impact on an individual’s ability to work are considered by the Social Security Administration when determining disability status.

If you are experiencing joint pain and instability due to EDS and are considering applying for Social Security Disability benefits, it’s important to gather as much medical documentation as possible to support your case. This can include imaging tests, medical records, and statements from doctors and other medical professionals about the severity and impact of your symptoms. Working with a disability advocate or attorney can also help ensure your case is presented effectively to the SSA.

Is Ehlers-Danlos Syndrome a disability? Unstable joints and joint dislocations

Unstable joints and joint dislocations are a common occurrence for those with Ehlers-Danlos Syndrome (EDS). In fact, it’s like a fun little surprise party for your body every time you move! You never know which joint will dislocate next or when it will happen. Will it be your shoulder? Your knee? Your jaw? The possibilities are endless!

But let’s be real, it’s not actually a fun party. Dealing with joint instability and dislocations can be incredibly painful and disruptive to daily life. It’s like playing a game of Jenga with your body, except every block is a different joint and the consequences of it toppling over are much more severe.

If you’re living with EDS and struggling with joint instability and dislocations, it’s important to seek medical treatment and work with a healthcare team to develop a plan to manage your symptoms. This can include physical therapy, bracing, and in some cases, surgical intervention.

And if you’re ever feeling down about the constant game of “will it dislocate or won’t it?” just remember, you’re not alone. There’s a whole community of people out there with wobbly joints and a love-hate relationship with Jenga.

Is Ehlers-Danlos Syndrome a disability? Vascular EDS and heart problems

Oh, the heart. It’s like the diva of our bodies, demanding all the attention and causing problems left and right. And if you have Vascular Ehlers-Danlos Syndrome (vEDS), the heart can be an even bigger diva than usual.

Vascular EDS is a rare type of EDS that affects the connective tissue in blood vessels and organs, including the heart. And let’s just say, the heart doesn’t always play nice when it comes to vEDS. It’s like it’s constantly auditioning for the role of the next big medical drama.

But in all seriousness, vEDS can cause serious heart problems like aortic aneurysms, dissections, and rupture. It’s important to work closely with a healthcare team to monitor your heart health and take preventive measures, like avoiding extreme physical exertion or wearing protective gear.

So if you have vEDS and your heart is causing you trouble, just remember, you’re not alone. Together with your healthcare team, you can keep that diva in check and hopefully get a standing ovation at your next medical check-up. If only…

See more

Our next OT sharing her hidden disabilities is @nataliehixy.

As a reminder, Natalie has Ehlers Danlos Syndrome.

Here #WhatYouDontSee #OTweek2021 #OTsForEquity

Do you have any questions for her? pic.twitter.com/jmdgRIuFCx

— AbleOTUK (@AbleOTUK) November 4, 2021

Is Ehlers-Danlos Syndrome a disability? how about Postural Orthopedic Tachycardia syndrome (POTS)?

Postural Orthostatic Tachycardia Syndrome (POTS), the condition that makes standing up feel like you’ve just run a marathon. And not a fun marathon, like a marathon of your favorite TV show, but like a marathon where you’re being chased by a pack of hungry wolves.

POTS is a common symptom of several types of EDS and can cause dizziness, fainting, and a rapid heartbeat upon standing up. It’s like your body forgot how to be upright and is just as surprised as you are that you’re not lying down, so it tries to force you to….well, lie down… it is a ton of fun when you are just trying to walk to the bathroom in the middle of the night.

But fear not, my fellow POTSies, there are ways to manage the symptoms. Staying hydrated, avoiding triggers like hot weather or standing still for too long, and doing exercises to improve blood flow can all help.

And who knows, maybe someday we’ll be able to participate in a standing-only dance party without fear of collapsing. But until then, let’s just enjoy the view from the ground and make the most of our sitting-down activities.

Is Ehlers-Danlos Syndrome a disability? Applying for Disability Benefits with EDS

Ah, the joys of applying for disability benefits with Ehlers-Danlos Syndrome (EDS). So, Is Ehlers-Danlos Syndrome a disability? It’s like a never-ending game of “guess what symptoms I have today!” with the Social Security Administration (SSA).

But fear not, my EDS warriors, because in this section we’ll be discussing everything you need to know about applying for disability benefits with EDS. From the initial application to the administrative law judge hearing, we’ll cover it all. So sit back, stretch out those hypermobile joints, and let’s get started.

Is Ehlers-Danlos Syndrome a disability? The application process for Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI)

The application process for Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) can be a daunting task, especially when you’re dealing with the unpredictable nature of EDS symptoms. But fear not, because we’re here to help.

The first step in the application process is to gather all the necessary medical records and documentation to support your disability claim. This includes documentation of your EDS diagnosis, as well as any treatment records and doctor’s notes that detail the severity of your symptoms.

Once you have all the necessary documentation, you can begin the actual application process. You can apply online, by phone, or in person at your local SSA office. During the application process, you’ll need to provide detailed information about your medical history, work history, and daily activities to help the SSA determine the severity of your disability.

After you submit your application, it will be reviewed by a disability examiner who will determine if you meet the medical criteria for disability benefits. If your initial application is denied, you have the option to appeal the decision and request a hearing with an administrative law judge.

Overall, the application process for SSDI and SSI can be a lengthy and complicated process. But with the right documentation and assistance from a disability advocate or attorney, you can increase your chances of successfully obtaining disability benefits for your EDS.

See more

"So how do I do gymnastics with EDS?

Well I don’t really train flexibility, I do physio and strength work which helps keep my joints in place." Natasha Coates is a elite disability gymnast and talks about training with Ehlers-Danlos syndrome https://t.co/956RYouhrY pic.twitter.com/YzqhLI5GSA

— Ehlers-Danlos Support UK (@ehlersdanlosuk) July 8, 2019

Is Ehlers-Danlos Syndrome a disability? Importance of genetic testing for EDS

Ah, genetic testing! The ultimate DNA detective work that can uncover hidden secrets about your family tree. But when it comes to EDS, genetic testing is more than just a way to satisfy your curiosity about your ancestry. It can actually be a crucial tool in determining your disability status.

Why, you ask? Well, genetic testing can help confirm a diagnosis of EDS and identify the specific subtype of EDS you may have. This information can be incredibly helpful when it comes to applying for disability benefits and demonstrating the severity of your symptoms.

So if you’ve been putting off genetic testing because you’re afraid of discovering a long-lost relative who’s a notorious bank robber, don’t delay any longer! Get tested and get the answers you need to help support your disability claim.

Is Ehlers-Danlos Syndrome a disability? Residual Functional Capacity (RFC)

Oh, Residual Functional Capacity (RFC) – sounds like a fancy term, doesn’t it? But don’t let the name intimidate you! Basically, RFC is just a fancy way of saying, “How much can you actually do?” And for those of us with Ehlers-Danlos Syndrome (EDS), that can vary greatly depending on our symptoms and how they affect us. So, is EDS a disability? Well, that’s where the RFC comes into play. It helps determine if our symptoms make it difficult or impossible to work, and therefore qualify us for disability benefits. So, don’t be afraid of the RFC – it’s just a tool to help determine if EDS is a disability for you.

Is Ehlers-Danlos Syndrome a disability? Free consultation with disability advocates and attorneys

Oh boy, free stuff! Who doesn’t love free stuff, especially when it comes to legal matters? Well, if you’re struggling with Ehlers-Danlos Syndrome and wondering if it qualifies as a disability, you may want to consider a free consultation with a disability advocate or attorney. These lovely folks can help guide you through the maze of paperwork, medical records, and administrative law judges to determine if you’re eligible for disability benefits. And best of all, it won’t cost you a dime (at least not for the initial consultation). So go ahead, give it a try, and who knows? Maybe you’ll get lucky and find someone who actually knows what they’re talking about.

Is Ehlers-Danlos Syndrome a disability? The importance of seeking disability benefits for EDS

Well, well, well, it looks like you finally figured out that Ehlers-Danlos Syndrome can be considered a disability! Congratulations, you’re on the right track! Now, let’s talk about the importance of seeking disability benefits for EDS. Sure, you may be able to dislocate your joints with ease and your skin may be stretchier than a piece of gum, but did you know that these symptoms can actually make it difficult to work and earn a living?

That’s where disability benefits come in handy. Not only can they provide financial assistance, but they can also help with medical expenses and access to necessary treatments. So, if you’re living with EDS and struggling to make ends meet, it’s time to consider seeking disability benefits. Don’t worry, it’s not giving up, it’s simply getting the support you need to live your best life.

Applying for Disability – Jon Rodis & Kathleen Kane, Esq.

Is Ehlers-Danlos Syndrome a disability? EDS being an invisible disability

Ah, yes, the ol’ “invisible disability” routine. Just because you can’t see it, doesn’t mean it’s not there, folks! It’s like a ninja, stealthily wreaking havoc on your body without anyone even realizing it. But fear not, EDS warriors, just because your disability is invisible doesn’t mean your need for accommodations and support should be ignored. Let’s bring this sneaky syndrome out of the shadows and into the spotlight!

Want more about EDS? Read How to be unquestionably Happy: adult and child mental health in EDS because mental health is important; and 33 New EDS memes every EDSer Can relate to: Laughter because it helps to be able to laugh about EDS.

Is Ehlers-Danlos Syndrome a disability? Resources

If you’re looking for resources related to Ehlers-Danlos Syndrome (EDS), two great places to start are the Ehlers-Danlos Society and the EDS Support UK website. These sites offer a wealth of information on EDS, including symptoms, treatments, and resources for those living with the condition. Additionally, the Social Security Administration’s website. provides information on disability benefits and the application process for those with EDS who may be unable to work due to their condition.

Is Ehlers-Danlos Syndrome a disability? FAQ’s

#StoryofLori